Often my mind works quicker than my fingers. I have at least three new posts in my mind, but I either can’t type fast enough or something else comes up and I want to focus on it so other posts get pushed back. Today is one of those days.
First, if you haven’t read the beautiful post on Kelle Hampton‘s blog today, I encourage you to read it immediately. Maura obviously touched her family in a profound way and ideally, her story will be the catalyst for more knowledge, awareness and acceptance. I am brainstorming ways that I can pay it forward and will be #honoringmaura today.
The sweet letter from Clare touched me not only because Maura’s joyous spirit is apparent in her sister’s love letter but because I too have a little girl who is a big sister to someone with Down syndrome. Ella loves David so much already and is almost obsessed. She is the first to tell me if he’s crying (even if I’m holding him at the time!) or to bring him toys for tummy time. She is constantly cheering him on and “good job buddy!” is heard frequently in our home. Since she’s only three, I know she doesn’t “get” what Down syndrome is about, but it really doesn’t matter. She loves him and thinks he’s amazing, isn’t that what’s important?
Yesterday, as we were getting ready in the morning she said, “Mama, are we going to have our cinnadone party after Miss Sarah’s house?” I had no idea what she was talking about so I asked her to repeat what she had said. She said again, “It’s time for our cinnadone party?” I said, “Honey, I’m sorry, I don’t know that word. Can we talk about it tonight?” When I picked her up she said again, “Mama, now it’s time for our cinnadone party?” After a few minutes of asking her to repeat it and trying to have her explain it again, it clicked! The syndrome party! I had mentioned to Jason & Ella at dinner on Monday night that I want to have a World Down syndrome Day party on March 21st. They both thought it was a great idea and Ella was obviously so excited she was asking for the “cinnadone” (syndrome) party already! When I brought up the idea of doing a party on World Down syndrome Day, we asked her who we knew that has Down syndrome. She immediately smiled and cheered, “David!” I love her excitement and innocence. She feels like David has something special and his extra chromosome is a celebration. And lately, I think she’s on to something.