When David was first in theNICU and he was diagnosed with Hirschsprung’s and duodenal atresia and respiratory illness etc. etc., I used to spend my nights and “downtime” reading up on all of his diagnoses. I searched Web M.D., googled everything, read blogs and reached out to people on Facebook. I became an Internet expert on Down syndrome and the myriad of conditions that can come with it. And then one day one of our favorite nurses said to me, “Jill, stop. The people who are thriving and doing well aren’t sitting at home writing blogs. It’s the people who are in the thick of it and completely immersed in their diagnosis the are writing blogs.”
While that was probably a bit of a overreach, to an extent she was right. And, as this blog shows, I am now one of those people. We are thriving! I don’t have the time to write daily because quite simply, we are living! David is rocking it! He is growing and moving and interacting and experiencing life. Hirschsprung’s is a distant memory (although one that will probably rear its ugly head again once “real food” comes into play). Down syndrome is a blip on the radar. Duodenal atresia is easily forgotten. David is sweet and smiley and loving and happy. He loves to dance, to make funny faces, to read books and scoot all over our house. He understands more and becomes more cognitively aware every single week. He is completely smitten with his big sister and working hard at being a good big brother (some days he works extra hard).
He’s the rockstar we always knew he was. He is truly a typical member of our family. We grow, we live, we love, we interact. It’s no different and just the same as all of your families.
We’ll still have hurdles, we’ll still have sorrows and shed many tears. But today, it’s easy. Today it’s uneventful. Today it’s boring. And we couldn’t be happier.