The Lucky Few

Here’s a little secret to perk up your day. If you search #theluckyfew on Instagram, you’ll be lost for hours in the joyful, cute, stubborn, funny and unique pictures of individuals with Down syndrome. I stumbled upon the tag early after David was born & I’ve used it myself a few times. Those of us who love someone with Down syndrome really do feel we’re lucky. We’re part of a secret club. Remember when I was desperate to be kicked out of that club?! My gosh how things have changed! I truly don’t know if there is a day that has passed since David was born that I didn’t feel lucky. Through the NICU stay and the surgeries, the PICU stay and more surgeries and this spring when we spent more time at the hospital than at home, one giant smile from my sweet boy & I immediately think, “Damn, I’m lucky.”
We are fresh off a month of thankfulness & counting our blessings and just beginning a month of hope and advent. I sit in awe that I have been entrusted with these little beings. I am overwhelmed at the responsibility and blessing that has been given to me. I know I wasn’t “chosen” for this role but man am I blessed to be inducted into the lucky few.

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The first day

Okay, okay this post is long overdue. The first day was technically last month, but as any mother of children starting school will tell you, getting anything done beyond packing lunches, picking out clothes and implementing early bedtimes is pretty much impossible.
David started his new therapy daycare the week before Ella started preschool. I was worried about him since he’s always been at a daycare facility with her and he’s pretty much obsessed with her. He adores her and is mesmerized with her so I knew a separation would be rough. The first day I dropped him off he actually cried for me. I’m going to go out on a limb and say sometimes mothers actually like when their children cry. Hear me out, trust me. I would never want either of my children to cry out in pain or fear, but David’s attachment to me was a big fear of mine when he was in the NICU. I remember crying after I would hang up the phone with the nurses at night. It’s unnatural for a mother to ask a relative stranger for updates on her own child.  I was afraid he would become so attached to the nurses that he would never truly bond with me.  As a therapist, thoughts of RAD and other attachment disorders flew through my head at lightning speed, and I was afraid of what the future held. So when the nurses and therapists at his new daycare told me he was a little sad when I left, it felt good, it felt right & it assuaged any fear I had last year.
Ella, on the other hand has been a different story. My social butterfly, my future class president has had a rough transition. She spent the first two weeks making excuses to make us late. She begged me not to leave, clung desperately to David and I and we left her in tears every day. It has been a battle to adjust for sure. No amount of cute clothes or special treats in her lunch was doing the trick. Finally, a solution! She was sick this week. Weird, right? But her boring day lead to a newfound appreciation for school. She practically ran in the door this morning!
Newness is upon us. They are both adjusting probably quicker than their parents. And the best news? They still adore each other!
Happy Fall!

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